SCI Support Groups & Other Resources

SCI SUPPORT GROUPS & OTHER RESOURCES

American Association of People with Disabilities
Committed to organizing the disability community to be a powerful force for economic change.

American Spinal Injury Association
Standards for health care, SCI education, research support, communication.

APACURE
Facts regarding central nervous system (CNS) disorders.

Apparelyzed
Spinal cord injury peer support.

American Society of Addiction Medicine
Drug abuse prevention and treatment information.

Caring Bridge
Connecting family and friends of the sick and injured.

disABILITY Information and Resources
Lists of resources and useful information.

Disability Today (DT) Network
The disability community’s first social media network.

FacingDisability.com
More than 1,000 videos of interviews with people with spinal cord injuries, their families, caregivers and experts.

Florida Gulf Coast Paralyzed Veterans of America
Dedicated to improving the lives of veterans who have a spinal cord injury or disease.

Freedom to Live
This foundation provides independence training and resources to help those with spinal cord injury and other similar catastrophic injuries to move out of institutional living environments (convalescent homes, hospitals, sub acute nursing, etc.) to live independently in their own place in the community (apartment, house, etc.). Oftentimes the family of the injured attempts to bear the burden of helping the catastrophically injured person make the transition and without the proper training and resources, more times than not, it tears the family apart. This foundation guides, trains, advises and provides resources which bridge the gap between a paralyzed person being completely cared for in a hospital or convalescent setting to assist the person to assume the responsibility of directing and managing their own care and thus being able to live an independent life.

Gary Karp, Speaker/Author/Trainer
A wheelchair user following an SCI known for his passion, clarity, humor and dazzling juggling skills. Inducted into the Spinal Cord Injury Hall of Fame as a disability educator.

Gillette Children’s Specialty Healthcare
Interactive Spinal Cord Map and more.

Homebound Resources: A Community of Caregivers
Ideas, solutions, web links, people and organizations to help make anyone’s home health care situation a little easier.

Hope Inc.
Empowering children who are physically and mentally challenged and their families.

IAVA
IAVA is the leading post-9/11 veteran empowerment organization (VEO) with the most diverse and rapidly growing membership in America. We don’t just support veterans, we empower them!

I Believe Inc.
Providing awareness through humanity.

Independent Living Research Utilization
Opportunities for independence for people with disabilities through research, education and consultation

The Injury Cooperative
A comprehensive resource to guide catastrophic injury survivors and their families through the complexities of life post-injury.

International Vent Users Network
Enhancing the lives and independence of home ventilator users and polio survivors through education, advocacy, research and networking.

The Kids Equipment Network
Providing durable medical equipment free of charge to children in need who have little or no medical/insurance funding.

Life Rolls On (LRO) Foundation
Using action sports to demonstrate what is possible despite paralysis.

National Family Caregivers Association
Addressing the common needs and concerns of family caregivers.

National Spinal Cord Injury Association
Includes resources listed by state.

Nursing Home Abuse Guide
Nursinghomeabuseguide.org Provides the public with accurate and up to date information on the many aspects of nursing home injury and abuse.

NTAF
The Leader in Fundraising Assistance and Support for Transplant and Catastrophic Injury. Helping transplant and catastrophic injury patients and their families afford critical but uninsured medically-related expenses through fundraising guidance and patient support.

People on Wheels
News and information for people who use wheelchairs.

Quadriplegic, Tetraplegic and Paraplegic peer support and information
Spinal cord injury peer support.

Radio Bug, Inc. (Internet radio)
A voice for the disabled community.

Row of Life
Adventures of military veteran and now rowing coach/motivational speaker Angela Madsen.

SCI Info Pages
A “best of the web” site for SCI health and caregiver information.

Social Security and Disability Resource Center
Overview of how the federal disability system works and provides answers to questions.

Social Security Disability Help
Makes the legal services and legal counsel of attorneys and disability advocates available to claimants across the United States.

Spinal Cord Central
Web-based resource on all things related to spinal cord injury and dysfunction (SCI/D).

Spinal Cord Injury Information Network
Educational materials and information on services of the UAB Spinal Cord Injury Model System (UAB-SCIMS) along with links to resources.

Spinal Cord Injury Resource Center
Information, chat room, message boards, classifieds and a book list.

Spinal Cord Injury Zone
SCI news updated almost daily.

Thisabled
Where people with disabilities help each other.

Triumph Foundation
Triumph Foundation contacts newly injured individuals with spinal cord injury and provides a gift basket full of resources and contacts to help the individual start the process of coping with and eventually triumphing over their newfound physical condition. Triumph foundation also provides funding for some things not covered by insurances (home modifications, ramps, lifts, shower-chairs, etc.).

We Connect Now
Uniting people interested in rights and issues affecting people with disabilities, with particular emphasis on college students as well as access to higher education and employment issues.